Wednesday, March 28, 2012

Crazy busy!

It has been crazy busy since I last posted.  We have had so much going on.  The first big thing is Livy!  We have been to Children's in Boston for appointments and a swallow study.  We have found that she doesn't swallow correctly.  She uses a slow nipple and gets mad because it is not fast enough for her and she also takes in so much air which causes gas.  If we have her use a slow nipple the food goes into her lungs which obviously isn't fun.  So for right now I have to thicken everything she eats.  We have an appointment to see an ear, nose and throat specialist but they couldn't get us in until May 14th.  So for mow we just have to thicken everything.  There could be a few reasons for her issues.  The first is anatomical.  They said sometimes the throat doesn't develop properly and most likely would end up being surgical.  The second is neurological.  It could range from physical therapy to god knows what.  So I am really nervous!
The second big thing is the girls slept in their own room in separate cribs last night.  It went well but they were really cranky today and wouldn't nap.  I am a little nervous about how tonight will go but I am hoping for the best.  It is a transition that needed to happen!  they can't sleep in a co sleeper next to me forever!
The third thing is the girls are going to a chiropractor.  I figure what can it hurt and maybe it will help them relax and not be so fussy 24/7.  They had their first appointment yesterday and we are following up tomorrow.  I am hoping it will at least help.
Well that's about it for now and about all the time I have atm.  Hope I can update more often.

Friday, March 9, 2012

It's been a crazy ride so far!

It has been awhile since I posted!  We have been going through some stuff with my girls and haven't had a chance to really sit down and blog.  So the girls are 3 month old and are smiling and starting to giggle!  I LOVE it.  However they are still up every 2.5 to 3hrs.  Livy my little peanut is having some issues with feeding.  Last Saturday I went out with my friend Abby for some much needed adult time.  Nate called me freaking out because Livy  wouldn't eat and at this point being 3pm had only had 3oz for the day.  Every time he would try and feed her she would scream.  She has always had issues feeding but it has slowly gotten worse.  We called the pediatrician and he said put her on Similac  Alimentum formula and see how she does.  She did great the rest of Saturday and Sunday.  She ate 24 oz on Sunday and we thought it must be a milk protein allergy.  Then Monday hit and she had a few bad feedings and it has been that way since.  So we are now at a loss.  We met with our pedi and showed him a video of Livy eating.  He saw it and immediately said we need to see a specialist!  We ended up getting referred to Dartmouth but I asked if we could go to Children's Hospital in Boston since it is ranked in the top 3 in the world.  So we headed to Boston today.  We met with a GI specialist and he ordered a barium swallow test.  He also is having us meet with a feeding therapist and both Livy and I will meet with a nutritionist.  We all feel she needs to be on breast milk and a nutritionist will help me cut out all dairy and soy.  So we go back to Boston on the 26th for the swallow test.  My instincts tell me its an allergy and if all test come back normal he will probably refer us to an allergist.  I have to admit I might request one at Dartmouth because driving home from Boston was crazy!  It took us 3.5 hours just to get home!  Although I will research and see who is the best and if it is Boston then an extra hour in the car is worth it! On a happier note here are some photos.